Ethereal

You know the brain is a weird thing? (See above) One minute it's fully comprehending something, and the next that something is completely out of reach and inaccessible. That's how it's felt with this upcoming surgery. I've known about it for a couple months, hell I half-begged the doctor to do it, but it hasn't felt real to me in all that time since then. Ethereal, that's a good word for it. It's like some vague threat that nobody really takes seriously, yet is still very real. Tomorrow that threat is realized, because that's when I'm going in to get my left shoulder replaced. I did have a very short period of realization during my hospital pre-op last week, which resulted in a half-second panic attack, a single smothered sob, and then total composure and the connection to the surgery flitted back off into the ether.

This is kinda what it looks like...
only worse

The surgery is taking place at 7:15...in the morning. Which means I need to be at the hospital at 5:30 am, which means I have to be awake at approximately 4 am. I'm debating not even bothering to go to sleep, because that's about when I go to bed anyway. The surgery itself will be a total shoulder replacement, sawing off the ball joint and replacing it with an artificial head and fixing a plastic cup to the socket area so the fake head has a snug place to sit. The x-rays showed that the shoulder configuration essentially reversed itself, with the head collapsing around the socket...it looked weird. The x-ray tech complimented me on my train wreck of a shoulder. Someday I'll talk about how much I enjoy x-ray techs and their odd, somewhat morbid sense of humor that totally jives with me. But that's a post for another time, space, space-time, and quantum. Maybe some strings and branes for added effect. Look, I had to throw in science somewhere...

The reason you haven't heard from me in the last two weeks is because of all the work I've been doing trying to get ready for the surgery. There are a lot of loose ends to tie up (no I don't work for the Mafia...usually) and things to get put in place so I don't have to worry about anything other than my recovery for the next few weeks. School, paperwork, government stuff, medical things, life, friends, stress, all that needs to be taken care of prior to a surgery. Even if these surgery is completely ethereal to me, the full ramifications just out of reach to my conscious mind, I'm still under an inordinate amount of stress. I've been increasingly anxious without having a concrete reason (even knowing full well a lot of it comes from an unconscious worry about the surgery, I can't connect it on a logical or conscious level), so it's lowered my ability to focus and be able to do things, which requires me to prioritize what needs to be done and neglect certain others. Most of that has come at the cost of my social life and writing, two things that took a major hit in the last month when I semi-dropped off the face of the Earth. I figured that's something that I can pick back up after I'm doing better, whereas making sure my grades remain unaffected and finishing up paperwork on time seemed to be a more pressing issue.

This is the voice in my head for those who remember

I have taken some solace in knowing that this shoulder isn't as bad as the right one (which was replaced in June) and that I'm familiar with the workings of this one. The second joint always seems to be easier than the first one I've found (as evidenced by having both hips and knees replaced separately), so that does alleviate a little of the stress. It's still there, it always is. As blasé as I've been about the surgery and reassuring to everyone that it will be fine, there's always that little voice going "Yea but what if it isn't?" It's a hard voice to ignore. It convinced me I was going to die last year when I had my left knee replaced, although clearly it was wrong. That doesn't mean I can shut it off, but I have been slowly turning down the volume to its rambling statements of doom and hellfire.

I suppose it will be another couple weeks before any meaningful posts come out of this blog again. There might be a quick "I'm fine" post when I feel up to typing, or maybe something written by someone else with a quick explanation of how everything went. Otherwise, I'll be laid up and unable to use one arm and on enough painkillers to make a whale very, very happy. I'll try to get something out at a reasonable time.

Until then,
Andrew Bundy

My 7th Birthday

Hi blog,

Apologies for the gap. I've been trying to get a handle on everything and it's been frustrating and draining to say the least. The closer the surgery gets the more things seem to pop up to deal with. I'm definitely going to be looking forward to a nice, relaxing, pain-filled break after I get my shoulder replaced in exactly two weeks, let me tell you.

I was going to put a picture of a knee with AVN, but then I
decided this was a much better option. Don't you think?

Well, I suppose you're waiting to hear about the knee. I am too, I only just had the MRI on Saturday so I won't be learning anything from that for another few days probably. However, two days before that I went in to see my knee specialist (the first guy I saw was my general practitioner, who also does sports medicine) and the x-rays looked about normal, same as before. But then he pulled up a knee MRI I had done back in May (I didn't even remember having it) and he showed me the inside of my knee. It wasn't pretty. The majority of the interior was made up of necrosed (dead) bone. To be fair, this isn't exactly news to me. I've known that there was a lot of necrosis for a while, because of my Avascular necrosis (a degenerative bone disease caused by steroids. See here for details), but as long as the dead stuff stays inside the bone and doesn't penetrate to the surface, it's not going to cause any pain. Well, there was a tiny tentacle of necrotic (just using all sorts of variations of the word today aren't I?) bone snaking down through a big patch of it and had just barely breached the surface. There was only a tiny spot exposed, and my specialist thinks that might be what's causing the knee pain.
Theory: Because the pain only really shows up when I bend my knee at certain angles, that small dead spot is rubbing against something at that certain angle and causing the pain. When I get this newest MRI back I'll learn two things. A) Whether or not the little spot has grown any, 2) What can be done about it, assuming something needs to be done about it. Obviously there's a lot of speculation here, and that in itself is driving me up the wall. As accepting as I am about the shoulder surgery, the possibility that I might need another replacement (if the necrosis is spreading in the knee and the pain continues to get worse, my specialist might recommend surgery again) after that has done nothing to improve my mood. Frankly, I'm pissed. Murphy, always Murphy.

But that's neither here or there now so I'm trying not to think about it too much (and not doing a very good job). The book editing has been coming along, not great or fast, but it is progressing at least. Unfortunately there are more pressing things to do than editing my memoir. I'm not happy about it, because this memoir is literally the most important thing to me, but what can you do?

Let's talk about something pleasant. I feel this whole post has had a somewhat sour tinge to it. But now for something uplifting and cheerful! (Kinda) Two days ago I had my 7-year rebirthday (and I think I'm having a regular one in a few days too). In some ways, I am seven years old. This me, right now, is only seven years old. It's when I got my bone marrow transplant from marrow harvested from my brother Chad's hip bone (the needles look like something out of the Spanish Inquisition).  October 12, 2007 is when I got my new life, a new chance.

Excerpt from Life Has No Title:

When you receive an infusion of bone marrow, the staff up at City of Hope calls it your “birthday,” the day where you’re given new life and, in a sense, reborn. October 12, 2007 is my oncological birthday. The doctor for the day, Dr. Pawlowska (spelled right the very first time!), came in with a nurse carrying a bag of what I at first believed was blood. I had known that my mom was organizing people to donate blood for after I had my bone marrow transplant, and thought that before I could receive it I would need to bolster my cell counts, but I was mistaken. Instead, the ruddy-colored viscous liquid was the bone marrow! This piqued my interest a great deal, insofar as someone who is hopped up on a staggering amount of dilaudid can do anything to a great deal. I had been paying as much attention as possible, learning what I could about this and that, gaining as much knowledge as a second-year med school student in the process. If I had the energy to focus, I would listen in on conversations and pick up some odd terminology or medical explanation for whatever god-forsaken side effect I had picked up that day.

“How are you today good sir?” Dr. Pawlowska asked in her thick-accented way. It was the same question every time she saw me in the morning. “How are you today good sir?”

Most days I would respond with, “Okay I guess.” Or “Not too great.” I was a master of understatement. But today, I gathered up a smile and told her, “Excited. That’s the bone marrow?”

“It is. We’ll just hook this up and you’ll be good to go.”

“Wait…how does it get into my bones then?” I asked suspiciously. As far as I could tell, there were no nanobots lurking in the substance ready to transport the bone marrow from my bloodstream into the centers of my bones, where they would thrive and drive out the remnants of my treasonous cells.

Dr. Pawlowska offered up a tentative smile. “To be honest, we’re not entirely sure. I could tell you all about the different theories and everything, but nothing has been proven definitively. They sort of magically find their way into the bones.”

Magic. One of the last words you want to hear when a doctor is explaining such an important medical procedure to you. “Magic,” I repeated slowly, not entirely sure if I had misheard her in my drug-induced haze.

“Magic,” she reaffirmed.

We looked at each other for a long moment, then I shrugged and lay back in my bed, too exhausted to argue and knowing that the good doctor knew what she was doing, even if she wasn’t sure about the exact nature of the procedure. “Good enough for me. Let’s get started.”

So there you go. Chad saved my life. I wouldn't be here if he hadn't donated his marrow. The poor kid got stabbed by a thousand saw-toothed needles, woke up so groggy he couldn't figure out how to properly use a straw and had a sore hip for several days. I have him to thank for this second chance and the ability to continue to live and enjoy life, all the things I love: writing, space, science, friends, family, space. I'll never be able to repay that, but at least I can pester him with interesting space facts the next time I see him.

PS: Comet Siding Spring will be flying past Mars on October 19 at a distance of 89,000 miles (much closer than the moon is to Earth). It'll be awesome.

Your 7-year-old Master,
Andrew Bundy

Hectic

Hi blog,

Apologies for the late post, my computer recently attempted some bizarre form of self-destruction and I put it in the time out corner...forever. In its place is a new computer that seems to function normally as of writing this, so I shall stick with this one because I like functional technology. But the technology has not been the only hectic thing going on lately, it's been a veritable madhouse of events and non-events.

The magnetic donut

Still no word on my knee. In fact, I still haven't even had the MRI. I should have included in last week's post about the fun MRI waiting games "Hey MRI, when are you going to get scheduled so I can actually learn something?" But I have a date with a giant magnetic donut machine on October 10th, so at least that's good. Although if it takes two weeks to get figured out, I'll be cutting it really close to my surgery date on the 28th of the same month. Down to the wire!

It is now official: I have begun (in earnest) on the second draft of my memoir. Please, please, hold the applause. Oh, there is none...right, well keep holding it then. After Nick got back from insane death race in which he kicked proverbial ass (because kicking a real ass usually pisses off its owner, or worse, it'll kick you back), we shortly resumed work on our books. Nick has been screaming through his (I'm not sure if that's literal, you'd have to ask him) and cranking through his edits at a blistering pace. Meanwhile, I am trudging through the quagmire of my childhood and questioning the legitimacy of keeping any of it for the final product of the book. It's an agonizingly slow, painful, annoying process to go through nearly 40 pages of probably unnecessary junk to sift out what is important, especially when you know the real content hasn't gotten done and you feel like all you're doing is wasting time when really you'll have to rewrite that whole section almost completely. And the feeling that I have to rewrite that entire childhood-high school section is reinforced by reading Lance Armstrong's 2000 memoir and seeing how much more compelling the telling of his story is than the telling of my story (at least through the pre-cancer parts). It's driving me crazy, knowing that what I've done is supremely subpar work and having very little idea how to fix it save for scrapping it all and starting over is just...GAH!

Anyways...I'm at least making progress through it and am now on the edge of getting to the real meat of my story. Progress has been slowed somewhat by a resurgence in physical issues (discussed shortly), but I'm doing my best to push through them and get the work done anyways.

(Told you it was shortly)

Well if I ever had a nickel for a dime, I'd tell you that the first part of this sentence makes no sense. However, I'd also tell you that my migraines have crept back in when I wasn't looking. Over the last week I've been dealing with borderline crippling headaches, and over the last two days the headaches haven't been borderline at all, they've been full-force Andrew-stopping nightmares. I'm not sure where this sudden surge of headpain comes from, but I suspect it's stress-related. The other option is that my preventative migraine medication is no longer functional. This happened last year with a different medication, which I'd been taking for a year. Now that I think about it, I've been taking this new medication for about a year too. That's probably just a weird coincidence that I don't particularly like at the moment.

But let's focus on something else: my shoulders! The right shoulder continues to improve and is now functioning just as well, if not BETTER than the left shoulder! Then again, this might not be as impressive as it sounds, because my left shoulder is slowly deteriorating at an increasingly not-so-slow pace. In fact I can hear the grinding crackling crunches when I rotate my left shoulder in certain ways, which, although they don't hurt, elicit a kind of anticipatory wince for the pain that doesn't come. But I'm not worried about the left shoulder, because I'm getting a better one soon anyways. What's more important is my right shoulder and how it's been holding up. The range of motion is improved, the pain is nonexistent at the best of times, and not as bad as it used to be at the worst of times. I'm continuing to stretch and work on both shoulders, both in physical therapy and at home (although probably not as much as I should be at home, but that's something I'm working on), and I think I can expect a very good recovery for the right shoulder, and the left one once that's been dealt with.

All right, time for me to fly off and do something. Ciao blog and readers!
Your aeronautic overlord, Andrew