Showing posts with label Coming Soon. Show all posts
Showing posts with label Coming Soon. Show all posts

Friday, October 9, 2015

When Surgery is Good News

Hey readers,

So we're going to be going with a relatively short post this day. I suppose it's a good thing, not having that much to report and update you on. Mostly it'll be focused on news with my ankle.

After getting an MRI and some x-rays, I finally managed to get in to see my new ankle specialist. I went through the whole routine of filling out paperwork and running out of room where it says "List all surgeries with approximate dates" and having various nurses and doctors saying "Wow, aren't you a bit young for all this?" and "I'm sorry you had to go through all that." It's funny to see trained medical professionals act with the same stunned uncertainty that I see when "normal" people find out about my medical past and can't figure out how to express their pity and/or sympathy properly. But I did like the doctor, he listened to my opinions (I can't work with doctors that assume I know nothing and won't factor in my suggestions or treat me like an ignorant child), showed me what he saw in the MRIs and x-rays, and freely admitted that this was an extreme case and, rather than go forward assuming he knew best, wanted to get the opinions of some other doctors to see what they thought. I always like that, because I've had more than my fair share of arrogant doctors who think they know best and then turn out to be totally wrong.

The bone spurs are visible just to
the left of the screws

There is some separation of the bones that
is usually associated with older people
Now let's get into the specifics about the ankle. The x-rays and MRIs showed that there are some bone spurs on the inside portion of my left ankle, no real news there. However, he also spotted a stress fracture on the medial malleolus (lower tip of the tibia), which is right above where most of the pain has been located. It might be possible that at least some of the pain comes from this stress fracture. These are all pretty sedate problems for me, things can will either heal on their own or require basic surgery (which I'll discuss shortly) to fix.

The black areas surrounded by white
are where the AVN is most noticeable
(A dove-shaped area above and a
bridge-shaped area directly below that)
However, the MRIs showed a much more serious potential problem in the future. Back in 2010 I had ankle allografts on both ankles (basically removing part of my ankle and replacing it with donor bone) that helped with the damaged portions of my bones caused by AVN (a degenerative bone disease I got as a result of my cancer treatment's treatment, my not so little souvenir I picked up when I had to survive the cure). These donor bones were healthy and over the last few years they've looked very good on x-ray, everyone's been impressed by them. But looking at the MRIs of the ankle, the specialist saw that the AVN was now starting to affect the fresh, healthy bone. The AVN is very pronounced in the lower "knob" of the tibia and also in part of the talus (the part that had been replaced five years ago). Although it probably isn't causing my pain now, since AVN usually only hurts when it reaches the surface of the bone, which it hasn't done yet in the aforementioned areas, it will require additional surgery at some point. It could be years or decades from now, or it could be months, it's hard to say. Basically it'll happen when the pain comes back because of the AVN or if the structure collapses like it did back in 2009, which is what prompted the surgery in the first place.


Fortunately, the AVN is not an immediate problem, but it is something to keep an eye on. The more immediately problem (bone spurs) are a lot easier to fix. My doctor would prefer to be on the cautious side and err toward a minimalistic approach to healing, which I can totally get behind. The plan is to do arthroscopic surgery, which uses a small camera and instruments to see and clean out the damaged areas of the ankle, and then see if that helps sideline the pain for a little bit. Compared to the huge joint replacement surgeries I'm so familiar with, this is far less intrusive and debilitating. After the surgery, the specialist wants to see me every 6-12 months to get images of my ankle so we can check on its progress and catch any further damage early on, before it has a chance to morph into something major. Until the surgery, I've been given orthotics and a brace to help take some of the weight off of my ankle and alleviate the pain as much as possible. And I'll be back to using my cane to take weight off of my ankle. (The doctor felt bad for me, since I would "stick" (terrible pun) out, but told me I could use it to whack people. I think that's the moment I realized how much I liked this guy. Beating people with canes always makes me think of the man who tried to assassinate Andrew Jackson and the 67-year-old president wailed on the guy with his cane). All in all, it feels like this is something that can be taken care of easily and I'll be able to move past it with relative ease. I don't have a date yet for the surgery, but I'm supposed to get a call from the doctor's surgery scheduler to get that sorted out.


Until then, I'm going to keep chugging along and staying productive.
Ciao

Coming soon:
Keep an eye out for the next blog post, which will throw some hard truths and harsh spotlights on an issue that underlies everything in my life, and in the lives of millions and millions of other cancer patients and survivors.

PS: I don't think this was nearly as short as I thought it would be. Sorry for accidentally lying to you.

Saturday, March 22, 2014

Nick Hollon: Tracking Success

Hi blog,

You may have noticed a couple changes in your look, I may have done a slight makeover and then had your name changed. Originally, you were named after my book, but that seems like a bit too much like shameless self-promotion, so after some brainstorming with Nick (details to follow shortly), I came up with your NEW title! "Surviving the Cure." Since this is a blog from a cancer survivor who has dealt with numerous issues stemming from his treatments that saved his life, it seemed very appropriate to come up with a title that related to that in some way. Several bad ideas later, I came up with this name and Nick immediately latched onto the idea. So this is your new name (until I think of something better, if I ever do), I hope you like it! Because there isn't a damn thing you can do to change it!


Okay, now I said "details to follow" earlier, so I'll get into that. Nick and I met yesterday for our weekly book-related meeting. I had tasked him with rewriting some of his rough draft and giving me ten pages of his best ever work for me to edit, and I would give him ten pages of my more recent stuff for him to edit. Both of us handed the other our ten pages (Nick gave me fifteen pages, but I only got through about ten of them for the sake of time) and I busted out my Red Pen of Death (people who have suffered my editing know to fear the RPD) and got to work. He finished in about twenty minutes, both of us very quiet as we marked and remarked and scribbled out and circled things on the other's paper. Although he had finished, I was only about halfway through his section, being the horrifically meticulous editor that I am, so he spent the remaining time of my editing working on his book some more. 


He started with my work, pointing out some issues I had using a passive voice at times and correcting me on a few facts when it came to writing about him. The section I had given him consisted of a gruesome story about my neck and then another section talking about Nick's 100-mile run around the high school track to raise money for cancer research. Once he finished, I went and pointed out the single most confusing metaphor I have ever come across in my entire life. I was so confused that I went and showed it to my dad, thinking that I perhaps didn't understand it for one reason or another and that was a personal failing on my part rather than a rambling monstrosity that Nick put in. After a couple minutes, my dad looked to us and said, "Is this supposed to be a metaphor for something?" I busted out laughing, feeling vindicated. Nick had a hard time explaining it himself, so I told him to get rid of it. 

The last thing we did was talk about blog management (hence the name change). We went over some ideas for putting stuff up on our blogs, which I shall begin instituting next week, so stay tuned to find some amusing and possibly interesting facts and posts. The session ended with my idea of posting up part of our memoirs that we've been working on so you get a sense of what we've been doing. I'll be putting up my section about Nick doing his 100-mile run around the track. Here's an article written about Nick's monster run: Nick Hollon piles up miles to buoy leukemia-stricken pal

Nick is at the front of the pack, my dad center frame

Enjoy this little blurb from the book! Your (mostly) benevolent overlord, Andrew

Excerpt from Life Has No Title (working title):

Nick and I were both running our own races. I was fighting for my life, and he was running to live his. Our starting lines were separated by time and distance, but at some point our routes merged and led us to the same path. We ran together, sometimes one of us a little ahead of the other, sometimes a little farther behind, but we were on the same track, always ready to rejoin with the other when they needed it. And while time is the great separator and destroyer of connections, and while there were many different routes for either of us to take that would split us asunder, we never ventured onto them. When you find someone like Nick, the last thing you want to do is diverge from their path, you want to run with them as long as your legs can carry you. A guy like Nick is one in fifty million, nay, fifty billion. In all of human history there may have been only one other like him, and I think I know who: the Greek soldier who ran from Athens to Sparta before the Battle of Marathon to ask for the help of the Spartans. The man ran 140 miles straight and arrived the day after he set off. That man's name? Nickademus Hollon the Elder. And it would be two and a half thousand years before Nickademus Hollon the Younger would walk this Earth, only to outdo his valiant predecessor in spectacular fashion.
I mentioned early on in this book that at our school we have a thing called the Senior Project, which involves a bunch of work that causes a great deal of resentment amongst the senior class, since we’re really the only school in the area that does it. For mine, I wrote a play. Nick decided he had to do one better than me, because he’s a competitive son of a bitch if nothing else.
When I was first diagnosed, Nick hadn’t yet decided on a project. He racked his brain, thinking, thinking, but nothing happened. After he came to visit me he felt like he needed to do something more. Like me, he sought purpose. It took him a little while before an idea planted itself in his mind and took hold like a beautiful weed, tenacious but wonderful, striking but stubborn. His love of running had been growing over the last few years, and the advice given to everyone on what to do for their Senior Projects was always: “Pick something you love.” Well, Nick loved running, so why not do something with that?
From there, it took him no time at all to work through the ideas. A 10k? For him, that was just an appetizer, a snack on the way to a larger goal. It wasn’t in his DNA to do something so insubstantial. We both liked acting, he thought about my own senior project and wondered if he could do a student written play and raise money that way. But his heart was leaving drama and shifting more and more into this primal desire to run and push himself. He had to do something with that.
What distance to do though? His original thought was 5000 miles, but breaking that up into a ten month period gave him an average of eighteen miles a day. He just had too much going on to do something so insane. After a bit of brainstorming with his mom, he came upon the magic number 3000. Nick liked that, he even came up with a name for himself. “Mr. 3000.” Catchy, clever, it might just work. With his running goal set, he now needed a monetary goal to aspire to. $10,000. Yes, that would do.
So while I was going through treatment and fighting to stay awake while bobbing along on the gentle waves of hardcore narcotics, Nick was pushing his body every day while riding a wave of endorphins, his own version of a high. Personally, I like his better. However, both of them are addicting in their own way. I tried to keep apprised of his situation, find out how he was doing, but I had become absorbed in my own issues and lost tabs on just about everyone around me, including the kid putting his body through hellish extremes on my account. He still came to visit, and I would ask him how the running was going and he would smile awkwardly and say it was fine. But as he left I always noticed that little limp, a stiff walk, a wince, something to belie the true pain he was enduring.
As great a kid as he was, as mature as he was, he was still a kid. Like just about everyone else who came to visit, he was uncomfortable with my situation. Who could blame him? It’s such an expected thing to be struck down out of nowhere, even worse when it’s somebody you know. I’d dealt with it a couple times in my short life already and it’s never easy. Yet despite his obvious discomfort, he would stay for hours at a time and talk and laugh and I could forget for a while just how shitty life truly was. Nick wasn’t ever one for letting people down, never has been, never will be.
I didn’t find out until the day of the event, May 17th, what Nick had planned to do. I had been a bet preoccupied with my own situation, the outside world didn’t exist too much except where it affected me. I had given up trying to make an effort to think about others, I just didn’t have the strength anymore. Hell, I barely had the strength to think about myself at that point. But Nick…man, I talk about him like he’s a saint, and in some ways he is. It may look like I’m playing up his good qualities, but in truth there’s no way to quantify someone like him, he’s above words, descriptions, metaphors, all of it. All you need to know about Nick is that he’s a runner second and a good person first.
It turned out that Nick had been struggling with his fundraising goal. It was hard for him to balance out everything and also talk to a hundred different people to get small donations that would take him a thousand years and change to hit his goal. He would need to do something big and brash, something to really grip everyone’s attention and draw them in to raise more money. A big run would do it. How big though? A marathon’s worth? Naw, not Nick. Twice that? Nope. A nice, even number to really blow people’s minds. A hundred miles around the school’s track would do it. It would be easy to watch, people could run with him, and the news would eat it up for breakfast, lunch, and dinner.
I had no idea what Nick would be doing that, day, I was just going about my life as usual, being miserable and trying not to think about it, being drugged up, not breathing very well, all those fun things I’d come to completely despise with a hateful passion in the hospital. Then, that afternoon, my mom asked me if I wanted to talk to Nick. I was confused, why would I want to talk to Nick? It wasn’t that I didn’t want to talk to him, but my mom had never really asked me if I wanted to talk to someone before, normally either that person called or I did. She explained to me what Nick was doing, a hundred mile run around the Poway High track. I was stunned, that seemed freakishly long, almost the distance from Poway to City of Hope. In my mind, I imagined Nick running all the way here to visit me, and a little smile played upon my lips.
“Sure. I’d love to talk to him.” I figured that she would hand me my phone, but instead she grabbed my computer and opened up a video call to Nick. My dad was holding up his computer and running beside Nick when he answered.
“Hey man,” Nick said breathlessly, his eyes only occasionally darting toward the screen. He was in the zone, breaking his concentration just long enough to come up with a response. “How ya doin?”
“Oh you know,” I said vaguely. I had swapped out my full face mask for a nasal cannula, which consists of a thin hose and two hollow prongs that sit in your nostrils to deliver oxygen in that way. It seemed better that way, I didn’t want Nick to see me with the full setup. I didn’t want to depress him at all, he had more important things to focus on. It was ironic to think that, because here he was, running to raise money for leukemia research, and I didn’t want him to see how bad it could truly get. We’re funny creatures. “I’m all right,” I lied. “How are you doing?”
“Good,” he said, a little exhale puffing out with each step. “It’s damn hot out though.”
“How hot is it?” I asked.
“Over 100. Hot.”
“Hell that’s pretty hot. You holding up all right?”
“Yea fine. I’m at mile…” He stopped talking for a minute until he passed some off-screen marker. “Just got to mile 80. Need to go. Gotta focus. Take care.” His last jumbled words to me faded away as my dad came to a stop and walked off the side of the track to catch his breath.
I waited for dad to hold up the screen again and he showed me what Nick was doing. I couldn’t actually make him out, there was a large group of people running with him. “Looks like he’s doing pretty well,” I mentioned.
My dad turned the computer back around and nodded. “Yep. He’s really kicking ass. I’m going to try and run some more with him. Love you buddy. Love you sweetie pie,” he said to my mom, and hung up.
“Well that was nice to get to see him run,” mom said.
I was tired just from watching Nick run, I had no idea how he could still be on two feet, or even alive. 100 degree weather? The kid was nuts, and he was only eighteen. There was someone going onto much bigger and better things, a flair for the dramatic, enraptured with the grandiose, never willing to give in and always willing to give something a try. “Yea it was.”
Nick ran through the day, well past nightfall before he finally completed his 100 miles. He could barely walk the next day, his legs were jelly, his body aching almost as bad as mine, but he felt an immense pride and self-satisfaction at completing his almost insurmountable goal. I was proud of him, he had fought his fight and won it. I still wasn’t through mine though, and my opponent still had one trick left up his nasty sleeve.